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NYC hospital takes patients surfing in Long Beach

The Hospital for Special Surgery made a splash last week with a surfing trip for young patients. Giving new meaning to the term “patient care,” the Adaptive Sports Academy at Lerner Children’s Pavilion at HSS treated 12 patients, along with some of their siblings, to sand and surf in Long Beach.

The hospital, which is located in Manhattan and has an outpatient center on Long Island, has an office in Uniondale and offers a number of orthopedic specialties.

It turned out to be a great day for surfing on Aug. 15, and HSS patients enjoyed sunshine and waves. International big-wave surfer Cliff Skudin taught the lessons, along with his specially trained staff at Skudin Surf, choosing the appropriate surfboard for each participant.

The hospital’s Adaptive Sports Academy enables young people with cerebral palsy or another physical challenge to experience the benefits of exercise. The program’s trips and recreational experiences aim to build their self-confidence, encourage independence and increase physical activity and mobility. The excursions are offered without cost, thanks to the generosity of donors.

Adaptive surfing and other activities are competitive or recreational sports for people with disabilities. Rules and equipment are sometimes modified to meet the needs of participants. Some patients are nervous at first, but they exceed their expectations and have a blast.

Ranging in age from 6 to 22, many patients who signed up for surfing have cerebral palsy or another condition that affects body movement, muscle control, posture and balance. A number of the young people have had multiple surgeries by pediatric orthopedic surgeons at HSS and go there for physical therapy.

Some used a beach wheelchair to get to the water, but that didn’t stop them from climbing on the surfboard. Balancing on a surfboard while in the water would be a challenge for any beginner, but with help from their instructors, many patients experienced the thrill of a lifetime standing on the surfboard while riding a wave.

“These children are fearless — they did so well surfing,” said Bridget Assip, a pediatric physical therapist at HSS who attended the trip. “It benefits them because they feel free in the water. They can do things that they may have a harder time doing on land. The families and kids had a great day at the beach and so much fun in the water.”

Six-year-old Brooklyn McDonald was excited just talking about it. “It went great, I loved it,” she exclaimed. “I caught a lot of waves,” she added, already using surfer lingo.

Her mother was thrilled to see what her daughter could accomplish. “It was awesome,” said Andrea McDonald, who has taken Brooklyn on a number of adaptive sports trips sponsored by HSS. “We try to bring her to these events because it’s almost the only opportunity she has to participate in something that’s inclusive,” she explained.

The Adaptive Sports Academy at HSS offers a number of fun activities that benefit patients throughout the year, including horseback riding, rock climbing, tennis and basketball.

Read article here 

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Camp gives kids with disabilities the chance to learn to surf

By Linda Massarella

Disabled kids are catching waves on Long Island and standing on their own two feet — or hands.

Isaiah Bird, 9, who was born without legs, is one of seven youngsters who are learning to ride the longboard this week on Atlantic Beach at what organizers call the state’s first surf camp for challenged students.

“It was great!” said Bird, a fifth-grader who thrilled beachgoers Tuesday by doing a handstand on the board as he balanced himself over the waves.

When Tommy Cura, 17, who has Down’s syndrome, arrived for the first day of camp, he needed an instructor to tow the board out to sea and stay with him as he wobbled to stand.

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Tommy Cura with a surfing instructorVictor Alcorn
On the third try, the instructor paddled off and left Cura to get back to shore by himself.

“I stood up!” Cura shouted excitedly.

The four-day camp was created by John Jay College Professor Jim Mulvaney, who watched his own autistic son, now 29, gain mental and physical strength from the sport.

“The ocean is a great equalizer,” said Mulvaney, who rounded up surf equipment and dozens of volunteers for the camp.

He adapted two of the surfboards with water jets to help kids with less physical strength participate.

“I’ve seen kids speak their first words after surfing. It’s a risky sport, but there is dignity in risk. It makes them feel empowered.”

Besides overseeing the free week of camp, Mulvaney treats another 20 special-ed students from Long Beach Middle School to weekly surf lessons.

View Article on NY Post

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Hospital for Special Surgery hosts surfing trip for kids with disabilities

By Kadia Goba
kadia.goba@newsday.com
For Aidan Conroy, his second try on a surfboard was a lot different from his first.

The 13-year-old from Oakdale surfed for the first time last year with a life vest, which helped him spring back up after falling off his board.

But this year, Aidan had no vest and he was able to feel the action in the water — an exciting experience for someone with cerebral palsy, which affects muscle coordination in his legs.

“It felt like I was just the same as everybody else,” he said.

Aidan was one of a dozen patients from the Hospital for Special Surgery who came out to Long Beach Wednesday to brave the waves and build sand castles. This was the medical center’s second annual group surf, where patients with disabilities get to participate in activities they might not normally experience.

“I went a lot further this year than I did last year,” said Conroy, who managed to catch a 4-second wave at one point.

Andrea Conroy cheered her son as she stood beachside with her other children, Kieron, 10 and Ethan, 6.

“He’s really good at archery,” she said of her son, who is also a competitive archer. “Where he can do something that requires stamina or hand-eye coordination, he’s amazing.”

The Hospital for Special Surgery specializes in orthopedics and rheumatology, serving children and adults. The 150-year-old institution launched its Adaptive Sports Academy last year, introducing cerebral palsy patients to activities including skiing, horseback riding, rock climbing and surfing.

“It allows the kids to use their bodies in new and different ways,” said Peyton Katz, pediatric patient and family coordinator at HSS.

Along with reinforcing therapy goals, Katz said fun activities boost patients’ self-esteem.

Alexandria Vega, 9, of Far Rockaway, who has cerebral palsy, was so eager to attend the event that she cried when it was initially canceled Monday because of rain.

“I stood up on the board three times, but last year I only stood up once,” said Alexandria , whose mother said she was a lot more confident this year.

Some patients sat while they maneuvered the gushing water with the help of skilled surfers from Skudin Surf, a surfing school .

Brooklyn McDonald of Brooklyn returned to Long Beach for the second time. The 6-year-old used a beach wheelchair to get around Wednesday. After being wheeled from the car to the beach to the plastic mats that create a pathway along the beach, Brooklyn had her chance in the water and on the land, where she likes to scoop sand.

“I [caught] the waves a lot,” she said.

Andrea McDonald, 35, said her daughter looks forward to the annual event and appreciates how it includes everyone.

“It doesn’t matter if she can stand or not stand, none of those things matter,” she said.

Patients can look forward to the next outing in October — a dance clinic with the Radio City Music Hall Rockettes.

Watch Video on Via Newsday

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News

Special Needs Surfers: ‘Riding Those Waves Makes Me Feel Free’

LONG BEACH, N.Y. (CBSNewYork) – Thanks to a program trading land for sea, kids with cerebral palsy and other special needs are surfing, and the benefits are physical and especially psychological.

On a summer day on Long Beach, Long Island, parents and children can be seen playing in the sun and sand, surf boards ready to ride the gentle waves coming in.

A closer look shows that some of these kids are in wheelchairs, yet they’re here to surf, reports CBS2’s Dr. Max Gomez.

“It’s a lot of fun, it’s soothing once you’re in the waves and its calm,” said cerebral palsy patient Sidorela Lessy from Queens. “Riding those waves makes me feel free.”

Such praise is common from all the kids and parents from the Lerner Children’s Pavilion at the Hospital for Special Surgery and hosted by the Skudin Surf Camp at Long Beach.

The surf camp is a once a year outing from the Adaptive Sports Academy, which also sponsors horseback riding, tennis, basketball and even rock climbing for kids with special needs, from ages 6 to 22.

Theresa Moriarty’s daughter has spina bifida.

“It’s wonderful to see her free, and just able to see her surf and just do these other activities that are now normally as accessible for her,” she said.

“I really enjoyed it,” said 11-year-old Kara Wollemboog.

“It was really fun because I got to stand up on the surf board three times, which is a new record,” said 9-year-old Maya Vega.

There’s something about being in the water that seems to be therapeutic.

“They feel more comfortable in the water than out of the water,” said Michael Salerno of the Skudin Surf Camp. “I don’t know how to explain it.”

Some children may be able to do things in the water they might not be able to do on land, which has medical benefits.

“It helps them with balance, it helps them with body awareness, and I think most importantly it helps them with self esteem and confidence,” said physical therapist Bridget Assip.

And then there’s something all the therapy in the world can’t provide in a hospital or clinic…

“Exciting and fun,” said 9-year-old Alexandria Vega. “It was really fun.”

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April Fundraiser

Saturday, April 20th, 7:00pm

Tickets:

$80.00 per person (Adults Only)

Includes:

  • OPEN BAR
  • GOURMET HOR D’OEUVRES,
  • HOT BUFFET
  • DJ 

Can’t make the event please make a donation. 

Space is limited please buy tickets online, there will be no tickets sold on the night of the event.

Come support an amazing cause!  Surf For All was able to expand last summer due the overwhelming generosity of all who attended last years event and your donations.   Because of the donations we received we were able to increase the number of surf events and start he first adaptive surf camp on the east coast!

 If you could see the smiles, rise in self esteem after one wave, and increase in balance and coordination it is truly amazing. For someone to  think, I cannot do this, and 5 minutes later see them surfing on a wave with a big smile, it is just moving! Often there wasn’t a dry eye on the beach. 

All events and the adaptive camp is provided at no cost to the participants, Surf For All is entirely run from your generous donations and sponsorships.

Please join us for a fun event to continue the stoke! 

Location:

The Loft

50 waterfront boulevard
Island Park, NY 11558
Buy Tickets

RAFFLES TO BE SOLD THE NIGHT OF THE EVENT…..

GRAND RAFFLE:

Rincon Getaway  –  INCLUDES  ACCOMMODATIONS AT THE PURA VIDA HOUSE (5 bedroom house with pool) FOR 5 DAYS,  4 NIGHT (RESTRICTIONS APPLY), 1 – 6 HOUR SURF GUIDE LESSON & 1 SURF LESSON AT THE SKUDIN SURF SHACK,  DINNER FOR 4 AT THE BEACH HOUSE –   $20.00 PER RAFFLE TICKET 

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MAKING WAVES: HSS HOSTS FIRST ADAPTIVE SURFING TRIP

Tracey Romero • Tue, August 22nd, 2017
Print this article
The Hospital for Special Surgery (HSS) recently made waves when it hosted its first adaptive surfing trip on Long Beach for some of its young patients.
According to a news release, 17 patients, most with cerebral palsy or another condition that affects body movement, muscle control, posture and balance, got to hit the waves courtesy of the Adaptive Sports Academy at the Hospital for Special Surgery’s Lerner Children’s Pavilion in New York City.
“The academy organizes trips and recreational experiences for pediatric patients to build their self-confidence, encourage independence, and increase physical activity and mobility,” said Siobhan Clarke, PT, DPT, PCS, a pediatric physical therapist at the hospital who also surfs and owns a home in Long Beach in the release.
Adaptive surfing is a way for people with disabilities to experience the exhilaration of riding the waves. Adaptive sports where sometimes rules or equipment is modified to meet the needs of the participants can be both competitive and recreational.
“Adaptive sports not only enable people to experience the benefits of exercise. They always feel empowered after trying a new activity and succeeding,” Clarke said.
The hospital program is offered without cost, funded by the generosity of donors and sponsors. Patients on the trip ranged in age from 5 to 21. Many have had multiple surgeries by pediatric orthopedic surgeons at Hospital for Special Surgery and have been patients for years.
Sidorela Lleshi, a 21 year-old college student, was one of the patients who participated in the trip.
“It was thrilling…the water was so cool. My muscles are tight, and sometimes I have spasms, but it felt like they loosened in the water,” she said in the release.
Another patient, 12 year-old Aidan Conroy, was hesitant before riding his first wave, but by the end he couldn’t get enough of it.
Each patient surfed with an instructor. World-class surfers Will and Cliff Skudin along with their staff at Skudin Surf provided the lessons.
“Outings such as this are a wonderful opportunity for the kids to socialize with other patients and accomplish things they didn’t realize they could achieve,” says Peyton Katz, CCLS, pediatric patient and family care coordinator at HSS in the release.
“Some kids are not sure at first how well they’ll do, but they always exceed their own expectations. Some parents cry when they see what their child can accomplish.”
Lisa S. Ipp, M.D., chief of Pediatric Medicine at Hospital for Special Surgery, added, “The Adaptive Sports Academy gives our patients a chance to develop new skills and interests, and it promotes mobility and activity. It also reinforces therapy goals by engaging participants in a new activity and requiring them to use their bodies in a new way.”

View Original Article Here

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People with disabilities take to the waves with ‘Surf for All’ on Long Island

By

A surf program on Long Island allows people with disabilities to experience the healing powers of the ocean.

It’s all thanks to the generosity of others.

9-year-old Isaiah Bird was born without legs.

If you think that has stopped him from living well you’d be dead wrong.

“Surfing is fun because you get to do cool things, you get to be in the water, and it’s just so much fun,” Isaiah said.

It’s made possible by the group “Surf for All” based in Long Beach.

“One of the problems with the disabilities community, we tend to coddle our children too much and we don’t give them the experience of falling down skinning their knee, hitting their head on the board, getting up and saying that was fun,” said Jim Mulvaney, Surf for All.

Mulvaney started the program in 2002 for his son who has autism.

This year he decided to have a whole summer camp.

“We’re trying to get more and more of them to be able to just surf,” Mulvaney said.

The camp runs four, one-week sessions. The participants get to surf four days in a row.

“This is rather than just have them an afternoon of fun, let’s have them four days of development, so it’s not just being on the board, we have some special exercises for them,” Mulvaney said.

“I love it I’ve been doing it for about 20-something years now, before and after I got hurt, and it’s just as fun now as it was then,” said Joe Testaverde, participant.

Lora Webster plays volleyball for the U.S. Women’s Paralympic team.

They just won gold at Rio so her next thing to conquer is the water.

“This is my first day out. I caught probably about four waves and it was awesome. My leg fell off a couple of times, but not all the way, so I was able to recover and hop back up,” Webster said.

Kathy Butler says life started blossoming for her son Charlie as soon as he started participating with “Surf for All.”

“His verbal skills, his communication skills,” Butler said, “Everything in his life started getting better.”

It doesn’t get much better than that.

 
View full story here
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9-year-old born without legs finds success on wrestling team

Whether it’s in the classroom, on the sports field or in the ocean, Isaiah Bird is making waves.

Isaiah, who was born without legs, plays football, soccer, runs track, swims, surfs and skateboards. But the wrestling mat is where the 9-year-old from Long Beach, New York, has become the one to beat. In his fifth year on the wrestling team, Isaiah went 27-12.

“I just keep going on,” he said. “

[I say:] ‘I can do this. There’s no excuses. I can do this.’ And I just do it. And I keep practicing and practicing. If I, one day I get pinned. … I go back to practicing and practicing and I get better and better and better.”

Mother and Son Born Without Arms Spread Hope With Special Bond

The rising fifth-grader has a supportive cheering section behind him made up of his mother, Bernadette Hopton; his friends and teammates; and his coach, Miguel Rodriguez. Isaiah said Rodriguez helped him a lot, giving him the fight to keep pushing.

“He says, ‘No matter what, you still can do all these things the other kids can do.’ And he says, ‘There’s no excuses. No matter what, you keep doing it. No matter what. Just do your thing. Have fun. That’s the most important thing,'” Isaiah said.

Rodriguez took Isaiah under his wing when the 9-year-old was in kindergarten. Since then, Rodriguez has functioned as both Isaiah’s coach and teacher assistant, accompanying him to every class and after-school.

Rodriguez said he got emails, phone calls and videos daily from adults and children around the U.S. saying that they’d been inspired after watching videos of Isaiah wrestling.

“He just gets it done. I think we complain a lot about everything in life. And we don’t know how easy we have it. Life is not always fair, but he doesn’t complain about it,” Rodriguez said.

He said that Isaiah was “one of the biggest gifts” in his life.

“I hope for him to follow his dreams. I hope for him to never change his personality and the way he is because he has an amazing, amazing personality. … He has no idea what changes he’s making in other people,” Rodriguez said. “Hopefully one day he can be a motivational speaker. Maybe he can, you know, travel the world and just show people that, you know what, he did it and that they can do it, too.”

 

Via ABC News

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A Long Island surf camp gives the gift of independence to kids with special needs.

Via FIOS one

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Events

2019 Surf For All Annual Fundraiser

Friday, May 10th 7:00pm – 11:00pm 

Tickets:

$85.00 per person (Adults Only)

Includes:

  • OPEN BAR
  • GOURMET HOR D’OEUVRES,
  • HOT BUFFET
  • DJ and Live Music 

Can’t make the event please make a donation. 

Space is limited please buy tickets online.

Location:

OCEAN CLUB ATLANTIC BEACH 

1565 Ocean Blvd,
Atlantic Beach, NY 11509
 
Buy Tickets

An assortment of raffles, from our sponsors and supporters,  will be sold on the night of the event.

GRAND RAFFLE:

RINCON, PUERTO RICO TRIP  

 

 

 ONE WEEK OF SKUDIN SURF HALF DAY SURF CAMP 

 

FOAM BOARD  $5.00 PER RAFFLE TICKET